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#endalz

2 Beiträge2 Beteiligte0 Beiträge heute

Honored that #HFC is highlighting this clip & recommending my memoir: "If you’ve ever felt lost in the language of a dementia diagnosis, this one’s for you. 🧡📖 ‘Finding the Right Words’ by Cindy Weinstein is part memoir, part guide—created to help caregivers make sense of the medical terms & complex realities that come with Alzheimer’s. A must-read for anyone looking to understand the emotional & clinical sides of this disease."

youtube.com/watch?v=EC9FxjqU_u

#EndAlz
#LaurenMillerRogen
#SethRogen

The Alzheimer's Association speaks out against #RFK's dangerous, false, insulting, cruel statements: "On behalf of the over 7 million Americans living w/Alzheimer’s, the Alzheimer’s Association is calling on Sec. Kennedy to stop spreading these harmful Alzheimer’s myths, & preserve the nation’s investment in Alzheimer’s research so we can accelerate, not stop, scientific progress on diagnosis, prevention, treatments, & eventually cures."

alz.org/news/2025/kennedy-harm

#EndAlz
#NIH
#Caregiving

Alzheimer’s AssociationContrary to Clear, Verifiable Facts, Secretary Kennedy Continues to Repeat Harmful Myths About Alzheimer’s and Dementia ResearchThe Alzheimer's Association calls on HHS Secretary Kennedy to stop dangerous fabrications about the state of Alzheimer’s and dementia research.

Reposting this important article about Dale Bredesen's unscientific claims, which have made him a great deal of $, about his protocol being able to reverse #Alzheimer's. Better to heed experts like Bruce Miller & Mario Carillo. Also, yes, to the Mediterranean diet and no to social isolation; yes to hearing aids and no to all nighters; yes to exercise, good sleep, anti-depressants as needed and no to a concoction whose main ingredient is false hope.

nytimes.com/2025/05/21/well/al

#EndAlz
#Caregiving

The New York Times · An Expensive Alzheimer’s Lifestyle Plan Offers False Hope, Experts SayVon Lindsay Gellman

Here is a review of my #memoir about my father's early-onset #Alzheimer's & the unbearable grief of watching a loved one die of #dementia. #Neurologist Dr. Bruce Miller wrote it w/me & explains the brain health (or sickness) behind the clinical presentations I saw: word-finding difficulties, spatial disorientation, behavioral anomalies, memory loss. The 1st chapter is on diagnosis. If this resonates, I am sorry. Readers have said the book has helped. bookshop.org/shop/WeAreHFC

#EndAlz
#Caregiving

This Wednesday, May 21 from 11 to 12 PT, I'll be leading the monthly #HFC caregiver group on #grief. It's called "Keeping Each Other Company." If you are a #caregiver for someone with #dementia, or if you aren't but feel the grief of losing someone about whom you care, please join. Here is the google doc to sign up and get matched with the caregiver group that best fits what you need. It may be the one I lead, it may not. Either way, it may help.💜

docs.google.com/forms/d/e/1FAI

#caregiving
#EndAlz

Google DocsHFC Online Support Group Interest FormThanks for your interest in joining one of HFC's Online Support Groups! This unique opportunity is for caregivers of loved ones living with Alzheimer's disease and related dementias. HFC's groups are led by credentialed social workers and trained group leaders who have experience supporting dementia family caregivers. HFC support groups are FREE and most groups meet weekly. We will do our best to match you based on your availability and the information you provide below. It can take up to three weeks to fulfill your request so we thank you for your patience. PLEASE NOTE: DUE TO THE VOLUME OF REQUESTS, COMMUNICATIONS FROM HFC ARE THROUGH EMAIL! PLEASE CHECK YOUR SPAM/JUNK BOX FOR HFC EMAILS SO WE DON'T MISS YOU. If you have any questions, don't hesitate to contact us - care@wearehfc.org Para completar este formulario en español, haga clic aquí.

#3GoodThings

1. Seth Rogen spoke up for science to the techbros whose $ supports an autocracy dedicated to the evisceration of research that makes our lives better by alleviating suffering. Zuckerberg, Bezos et al were there to celebrate the Breakthrough Prize, & Rogen called them out on their bad, bad faith. #Hero

2. I moderated a grief support group for the Rogens' foundation, HFC. The meeting helped some people who were having a hard time. #EndAlz

3. This bougainvillea #Bloomscrolling