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Details for the next meeting of the Bray ME/CFS adult support group
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #Bray @mecfs
Verwaltet von:
#myalgice
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon
on Wednesday, July 23.
Hopefully we’ll see some of you there &
hopefully we can have it outside if weather permits
https://irishmecfs.org/blog/monday-july-23-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association
Carers/parents/similar welcome.
Fortgeführter Thread
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A collection of tweets on the paper "Monitoring treatment harm in #MyalgicE / #CFS: A freedom-of-information study of NHS specialist centres in England" from
@mecfsskeptic
#MEcfs #MyalgicEncephalomyelitis #PwME
https://threadreaderapp.com/thread/1144264687917424642.html @mecfs
threadreaderapp.comThread by @mecfsskeptic on Thread Reader App@mecfsskeptic: 1) There’s a new interesting study out by a collaboration of ME/CFS patients and scientists. They’ve sent Freedom of Information requests to 38 NHS specialist centers for ME/CFS and asked them about t...…
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I searched but couldn't find a legal copy online of "Monitoring treatment harm in #MyalgicE/#ChronicFatigueSyndrome ..." that others can access so I uploaded here https://www.researchgate.net/publication/334005289_Monitoring_treatment_harm_in_myalgic_encephalomyelitischronic_fatigue_syndrome_A_freedom-of-information_study_of_National_Health_Service_specialist_centres_in_England
what we submitted to the journal which is something we own the copyright on.
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Summary article for laypeople: "Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" by David Tuller (June 2019)
https://virology.ws/2019/07/16/trial-by-error-nhs-me-cfs-clinics-lax-on-treatment-harms-study-finds/
#GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
#PwME @mecfs
virology.ws · Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds | Virology BlogBy David Tuller, DrPH In the last few years, the Journal of Health Psychology has provided a valuable platform for researchers, academics, and other experts ...
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"We studied a well-defined Australian patient cohort diagnosed via the International Consensus Criteria, recruited by a specialist ME/CFS clinic. The whole-exome sequences of 77 patients were contrasted against genome variation in the 1000 Genome Project’s genome-matched population."
#MyalgicE #MEcfs
@mecfs
Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Monday, June 23
Hopefully we’ll see some of you there & hopefully we can have it outside if weather permits
https://irishmecfs.org/blog/monday-june-23-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association
Carers/parents/similar welcome.
Fortgeführter Thread
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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
@mecfs @longcovid
pmc.ncbi.nlm.nih.govPreparing to download ...
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“Though the Association runs on limited resources, Mary describes the ME community in Ireland as “very kind and welcoming.” She recommends the ME Ireland website https://irishmecfs.org/blog to anyone affected by the condition.”
#PwME #MyalgicE @disability @mecfs @chronicillness @spoonies
Irish ME/CFS Association - for Information, Support & ResearchLatest NewsIrish Charity that provides information about ME/CFS, offers support to members and raises money for research into ME/CFS.
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #31
#MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#mecfs
@mecfs
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 30
#MyalgicE #MyalgicEncephalomyelitis #chronicfatiguesyndrome
#mecfs
@mecfs
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 29
#MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#mecfs
@mecfs
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image. Day #28
#MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
.
Most believe that following the Covid pandemic these older prevalence figures may be too low.
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 27
#MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs
@mecfs
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 26 m
#MyalgicE #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs
@mecfs
Fortgeführter Thread
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3-minute Action For M.E. #ME video. Uses survey data to list symptoms & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Fortgeführter Thread
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Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Fortgeführter Thread
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image. Studies suggest that virtually everyone with the illness has sleep problems.
Day 23
#MyalgicE #MyalgicEncephalomyelitis #chronicfatiguesyndrome
#mecfs
@mecfs