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illmarks Symptom: it feels like Cranial Pressure? <a href="https://www.illmarks.com/symptom-it-feels-like-cranial-pressure/" class="" rel="nofollow noopener" target="_blank">https://www.illmarks.com/symptom-it-feels-like-cranial-pressure/</a><a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/art/" target="_blank">#art</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/cfs/" target="_blank">#cfs</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-pain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronicillness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronicpain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/dysautonomia/" target="_blank">#Dysautonomia</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/headache/" target="_blank">#headache</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mcas/" target="_blank">#mcas</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/me/" target="_blank">#me</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/mecfs/" target="_blank">#mecfs</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/migraine/" target="_blank">#migraine</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a>

Chronic Illness Humor FunnyI spend so much time in bed that I'm legally one of Charlie's grandparents now. <a href="https://mastodon.social/tags/charlieandthechocolatefactory" class="mention hashtag" rel="nofollow noopener" target="_blank">#charlieandthechocolatefactory</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chroniclife</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonielife</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#cfs</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/adhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#adhd</a> <a href="https://mastodon.social/tags/adhdmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#adhdmemes</a> <a href="https://mastodon.social/tags/executivedysfunction" class="mention hashtag" rel="nofollow noopener" target="_blank">#executivedysfunction</a> <a href="https://mastodon.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatiguesyndrome</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a>

Tom Kindlon3/ "Findings highlighted the complex, cyclical & interrelated nature of ME/CFS symptoms & the substantial psychological, emotional & physical demands placed on individuals attempting to self-manage their condition" <a href="https://www.tandfonline.com/doi/full/10.1080/23311908.2025.2517870" rel="nofollow noopener" translate="no" target="_blank">https://www.tandfonline.com/doi/full/10.1080/23311908.2025.2517870</a>Image is from the latest Science for ME weekly update<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom KindlonNot sure if this is reliable or not: Causal Relationship Between Diet, Lipids, Immune Cells, & Chronic Fatigue Syndrome: A Two-Mediation Mendelian Randomization Study<a href="https://onlinelibrary.wiley.com/doi/10.1002/fsn3.70424" rel="nofollow noopener" translate="no" target="_blank">https://onlinelibrary.wiley.com/doi/10.1002/fsn3.70424</a>Uses data from the main UK biobank<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a>

Tom Kindlon4/A collection of tweets on the paper "Monitoring treatment harm in <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> / <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a>: A freedom-of-information study of NHS specialist centres in England" from <a href="https://mastodon.online/@mecfsskeptic" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfsskeptic</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a><a href="https://threadreaderapp.com/thread/1144264687917424642.html" rel="nofollow noopener" translate="no" target="_blank">https://threadreaderapp.com/thread/1144264687917424642.html</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom Kindlon3/I searched but couldn't find a legal copy online of "Monitoring treatment harm in <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a>/#ChronicFatigueSyndrome ..." that others can access so I uploaded here <a href="https://www.researchgate.net/publication/334005289_Monitoring_treatment_harm_in_myalgic_encephalomyelitischronic_fatigue_syndrome_A_freedom-of-information_study_of_National_Health_Service_specialist_centres_in_England" rel="nofollow noopener" translate="no" target="_blank">https://www.researchgate.net/publication/334005289_Monitoring_treatment_harm_in_myalgic_encephalomyelitischronic_fatigue_syndrome_A_freedom-of-information_study_of_National_Health_Service_specialist_centres_in_England</a> what we submitted to the journal which is something we own the copyright on.<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom Kindlon2/Summary article for laypeople: "Trial By Error: NHS ME/CFS Clinics Lax on Treatment Harms, Study Finds" by David Tuller (June 2019)<a href="https://virology.ws/2019/07/16/trial-by-error-nhs-me-cfs-clinics-lax-on-treatment-harms-study-finds/" rel="nofollow noopener" translate="no" target="_blank">https://virology.ws/2019/07/16/trial-by-error-nhs-me-cfs-clinics-lax-on-treatment-harms-study-finds/</a><a href="https://disabled.social/tags/GradedExerciseTherapy" class="mention hashtag" rel="nofollow noopener" target="_blank">#GradedExerciseTherapy</a> <a href="https://disabled.social/tags/GET" class="mention hashtag" rel="nofollow noopener" target="_blank">#GET</a> <a href="https://disabled.social/tags/cognitivebehaviouraltherapy" class="mention hashtag" rel="nofollow noopener" target="_blank">#cognitivebehaviouraltherapy</a> <a href="https://disabled.social/tags/CBT" class="mention hashtag" rel="nofollow noopener" target="_blank">#CBT</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicE</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom Kindlon🧵 It's 6th anniversary of our paper "Monitoring treatment harm in <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> / <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a>: A freedom-of-information study of NHS specialist centres in England"<a href="https://journals.sagepub.com/doi/10.1177/1359105319854532" rel="nofollow noopener" translate="no" target="_blank">https://journals.sagepub.com/doi/10.1177/1359105319854532</a>Hopefully it will influence, among other things, <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> clinics<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> 1/n

Tom KindlonInvestigating liminality in the lived experiences of young adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)Abstract: <a href="https://ore.exeter.ac.uk/repository/handle/10871/141146" rel="nofollow noopener" translate="no" target="_blank">https://ore.exeter.ac.uk/repository/handle/10871/141146</a>Image is from the latest Science for ME weekly update<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a>

A feral Cass (they/them)<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> If anybody has any resources (web pages, studies, etc.) that might help a friend of mine in getting a ME/CFS diagnosis, can you please link them below? Thanks for any help you can give.<a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a>

A feral Cass (they/them)Anybody got good resources (web pages, studies, etc.) on ME that I can pass on to a friend who's trying to get a diagnosis? Please link them below if you do. Boosts welcome.<a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ME" class="mention hashtag" rel="nofollow noopener" target="_blank">#ME</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#MECFS</a>

Tom Kindlon"Sign Up for INIM’s Nutrition Series" <a href="https://forms.gle/yHHfg6bjFLmus8ew6" rel="nofollow noopener" translate="no" target="_blank">https://forms.gle/yHHfg6bjFLmus8ew6</a>People can take part either online or in person (in Davie, FL)Launches Friday, June 27<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener" target="_blank">@pots</a> <a href="https://a.gup.pe/u/mcas" class="u-url mention" rel="nofollow noopener" target="_blank">@mcas</a> 1/

Tom KindlonNew: Plasma cell targeting with the anti-CD38 antibody daratumumab in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) -a clinical pilot studyAbstract only <a href="https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1607353/abstract" rel="nofollow noopener" translate="no" target="_blank">https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1607353/abstract</a>Fundraising is now ongoing for a larger trial <a href="https://www-me--foreningen-no.translate.goog/me-fondet-gir-fire-millioner-til-daratumumab-studie-pa-haukeland/?_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp" rel="nofollow noopener" translate="no" target="_blank">https://www-me--foreningen-no.translate.goog/me-fondet-gir-fire-millioner-til-daratumumab-studie-pa-haukeland/?_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a>

Tom KindlonNew from Australia:Membership has been announced for ME/CFS Guideline Development Committee<a href="https://www.nhmrc.gov.au/health-advice/me-cfs/guideline-development-committee" rel="nofollow noopener" translate="no" target="_blank">https://www.nhmrc.gov.au/health-advice/me-cfs/guideline-development-committee</a>Some reassuring names along with at least one person I would be a bit wary of<a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Chronic Illness Humor FunnyArtist: yeevz_ on Insta<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillnesslife</a> <a href="https://mastodon.social/tags/sotured" class="mention hashtag" rel="nofollow noopener" target="_blank">#sotured</a> <a href="https://mastodon.social/tags/alwaystired" class="mention hashtag" rel="nofollow noopener" target="_blank">#alwaystired</a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#fatigue</a> <a href="https://mastodon.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicfatiguesyndrome</a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#cfs</a> <a href="https://mastodon.social/tags/Mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#Mecfs</a>

Tom Kindlon2/ Replicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivityLinks <a href="https://www.embopress.org/doi/full/10.1038/s44321-025-00258-8" rel="nofollow noopener" translate="no" target="_blank">https://www.embopress.org/doi/full/10.1038/s44321-025-00258-8</a> <a href="https://archive.ph/19dzr" rel="nofollow noopener" translate="no" target="_blank">https://archive.ph/19dzr</a> <a href="https://www.bbc.co.uk/news/articles/cy8k73443g4o" rel="nofollow noopener" translate="no" target="_blank">https://www.bbc.co.uk/news/articles/cy8k73443g4o</a> <a href="https://www.s4me.info/threads/replicated-blood-based-biomarkers-for-myalgic-encephalomyelitis-not-explicable-by-inactivity-2024-beentjes-ponting-et-al.39964/post-618269" rel="nofollow noopener" translate="no" target="_blank">https://www.s4me.info/threads/replicated-blood-based-biomarkers-for-myalgic-encephalomyelitis-not-explicable-by-inactivity-2024-beentjes-ponting-et-al.39964/post-618269</a> <a href="https://www.sciencemediacentre.org/expert-reaction-to-observational-study-of-blood-biomarkers-in-me-cfs-patients/" rel="nofollow noopener" translate="no" target="_blank">https://www.sciencemediacentre.org/expert-reaction-to-observational-study-of-blood-biomarkers-in-me-cfs-patients/</a>Image from Science for ME update<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom KindlonEdinburgh Study Links ME/CFS to “Blood-Based Biomarkers” By David Tuller<a href="https://virology.ws/2025/06/21/trial-by-error-edinburgh-study-links-me-cfs-to-blood-based-biomarkers/" rel="nofollow noopener" translate="no" target="_blank">https://virology.ws/2025/06/21/trial-by-error-edinburgh-study-links-me-cfs-to-blood-based-biomarkers/</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a>

Tom Kindlon2/ “While slight improvements were observed in mental health and physical health indicators and the severity of ME/CFS-specific symptoms, symptoms remained severe and persistent over time, regardless of care model"<a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener" target="_blank">@fibromyalgia</a>

Tom KindlonNew Zealand: Prof. Warren Tate from Otago University was interviewed on RNZ's Saturday Morning programme. Discussing his group's recent preprint and his hopes for a clinically accessible biomarker test in the future.Info & recording: <a href="https://www.rnz.co.nz/national/programmes/saturday/audio/2018992365/approaching-life-changing-diagnosis-for-missing-millions-with-me-cfs" rel="nofollow noopener" translate="no" target="_blank">https://www.rnz.co.nz/national/programmes/saturday/audio/2018992365/approaching-life-changing-diagnosis-for-missing-millions-with-me-cfs</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#PwME</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@longcovid</a>

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